April 3, 2008
What are the Odds?
I just found this website today. http://www.co-cure.org/ And along with a hefty article on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Clinical Working Case Definition, Diagnostic and Treatment Protocols by Bruce M. Carruthers, et al. http://www.cfids-cab.org/MESA/ccpccd.pdf. I must say that I am much encouraged. Validation at last. The article was published just around the time I was struggling getting a doctor to pay attention to this "Rodney Dangerfield" of pain syndromes. Myofascial Pain Syndrome sufferers don't get no respect. Even my own doctor (whom I adore) downgraded (or upgraded) me to Fibromyalgia. Medical professional just get discouraged by chronic pain patients. But this article gives me hope that I am not crazy -- even as I sit here pretty effectively blocking out the small meows of ouchs that I have no matter what I do. Meanwhile, I sit here and read. http://www.cfids.org/about-cfids/default.asp